First of all, I’d like to apologise to everyone who has attempted to contact me via email or FB. I haven’t been on FB for a long time, and when I finally went to my gmail account the other day, I had 16,000+ emails in my inbox.
Which I deleted, en masse. I just decided it would be better to start over, considering my eye issues.
So…I apologise, really. I have thought of many of you over these past months, but I didn’t want to email anyone (or write a blog post), ranting, raving, or crying about my medical situation. Everybody’s got something crappy in their lives, right? And, under 45, the crappiness has escalated to horrors that I don’t think anyone foresaw.
You’re all suffering, in one way or another. It seemed petty and self-absorbed for me to go on and on about my troubles.
I’m sorry for not staying in touch.
Why get back online now? Well, it’s because it seems my symptoms are worsening, and in some cases I have new symptoms, and I figure it isn’t helping to just ignore them. If for no other reason, my kids can read this as a documentation of whatever illness this is, in case they have similar problems in the future (which was the original intent of this blog).
Last spring, my vision started to get really blurry. I put up with it until my annual eye exam in August, then discovered that I was seeing double. Up-and-down double, called “binocular vertical diplopia”. I had to push the ophthalmologist to take it seriously – why she initially didn’t, I have no idea. Asked what caused this, she said, simply, “Age.”
Side note #1: Really?? I know plenty of folks my age who do not see double. In fact, most of them don’t, and the one who does has it from head trauma (car accident).
She referred me to their “double vision expert”, who is an optician who prescribes special lenses for the condition. I have nothing against opticians, but they don’t get into why someone has issues with their eyes, which is what I need.
But I went to see her anyway. She did some visiony stuff, then told me that they could prescribe prism lenses but initially only “stick-on” ones, which they would try of different strengths etc until they found the ones that were most helpful. Then they would make permanent glasses with prisms.
So then I went to see their guy who actually writes up the order. He asked to see my glasses (which I purchased from Zenni, who are excellent btw), then commented, “I can’t work with these cheap glasses!”
Stunned, I replied, “Well, I’m poor so…”
Side note #2: Oh, microaggression, just what I needed.
“Never mind,” he stated, “it will be hard to stick the temporary lenses on these but I’ll try.” With a big sigh.
“How much will that cost?” I asked.
“$40. Each time we stick ones on. Then $400 for the permanent glasses,” he sorta smirked.
“$40, each time?? So if one set of stick-ons don’t help, I have to pay another $40 to try another set? Until you get it right??” I asked, making sure I understood properly. All the while thinking, “$400? I don’t have $400 for the permanent ones, either!”
I took my glasses back from him and told him I’d have to think about it.
That was the last time I went there. I complained to Dr Wonderful about them, and he confirmed he went there for his own glasses and was not at all impressed.
Yep, back to Dr Wonderful I went. He sent me for an MRI. He thought it might be multiple sclerosis.
MRI was normal.
First off glad to here from you. I can sympathize with the double vision as I had it in my left eye for a month. Dr, thought TIA bit MRI was clear and it finally went away. I was told the prism glasses too. Figured an eye patch pirate thing would be better but it cleared up. I am curious if you have had a full body ultra sound?
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Hi, my friend! Good to hear from you!
I haven’t had a full body ultrasound, no. I see the neurologist on Feb 20 and I have no idea what he’s going to say. I called him and asked his nurse if he wanted me to have more tests before I come in again, but was told “if he thinks you need more tests, he’ll order them!” Well, geez, just wanted to get ahead of things so I don’t wait almost a month, go in, then get sent for tests, and so on. Makes more sense to just order more tests before my next appointment. I hope it’s not another round of “I have no idea what’s wrong with you”.
I was hoping the diplopia would resolve on its own but it’s getting worse, and it’s been almost a year. This just isn’t right.
You need to get the full body ultra sound to determine any thinning , blockage or closures in your vascular system. Check cholesterol and red and white blood cell count and your blood oxygen level. Nearly all of your symptoms can be explained by poor or closed off blood circulation. Nothing to lose as it will let you know of any possible problem areas are present.. The MRI cannot determine any of the above causations. Take care and be strong.
Thanks! I will certainly tell my doctors this. xx