A Brief Post for This Week.

I went to see Dr. Wonderful’s junior colleague on Tuesday, and it was disappointing.  He didn’t know anything about parathyroid tests – which, considering he is a family practice doctor, is understandable I guess – but he did refer me to another endocrinologist.

He told me to use an OTC cortisone cream on both my arms “for the blotchiness” – he didn’t know what that was, either, or why I was losing pigment.  I don’t plan on coating my arms with cortisone cream, as it thins skin and as far as I know cannot help with loss of pigmentation.

He doesn’t think this is environmental.  He told me to follow a “low fodmap” diet.  I guess I can give it a try, once I look it up to see what in hell it is.

Then he scheduled me for a mammogram, and sent me on my way.

“We may never know what’s wrong with you” he says.  Arrgghhhh!

The new endocrinologist’s office hasn’t called me for an appointment yet.

Meanwhile, I went shopping for basic household stuff (tp, I use a LOT of that, toothpaste, etc) at Target on Wednesday, taking the dreaded senior van.  After walking around the shop for 1/2 hour, I was nauseated, drenched in sweat from my head and neck, red in the face, and had to fast-walk over to the restroom with an attack of diarrhea (fortunately, I made it in time and with no drama).

This usually only happens when I have been out for about an hour or more, so it’s getting worse.  I grabbed an extra plastic bag on the way out just in case my nausea escalated on the way home.

I sat outside Target, waiting for the van, out of the way of most people because I was embarrassed that I was bright red and sweating profusely.  A couple of customers asked me if I was alright, as they passed me on their way in to the store.

“Please hurry up van gosh I wish I had a car,” I thought, not the first time, of course. I can add “embarrassment’ to the list of issues I have with lack of transportation.

I literally crawled up the stairs when I got home, hung out in the bathroom for awhile, and then went to bed.  At 2 PM. Took anti-nausea meds and an antihistamine so I could sleep.  My bp was 176/90.

None of this is normal.  Whatever it is, it is getting worse and now I am rethinking my errands situation.  Can I go to the grocery store next week?  Heck, I went downstairs to get the mail today and my bp spiked to 180/97.  I am angry that this is rapidly confining me to my apartment 24/7.

I have things I want to do!  I have my first granddaughter arriving in November, and I want to travel to see her for Christmas (my son and his wife live far away in another state).  I want to get better!  It’s frustrating because, if it’s a parathyroid problem, all they have to do is take one or more parathyroid glands out, and voila!  Cured!  How can I make it through airports and long flights when I can’t even last a half hour in a store?

But…no diagnosis yet.  If I end up in the ER again I will demand a PTH test, along with a colonoscopy (might as well, since no one seems to be able to treat the diarrhea I have had every day since January).  That’s if I feel well enough to advocate for myself, which is unknown at this point.

As I write this, I am still nauseated and exhausted.  This is the most frustrating situation I have ever been in, and it’s scary, too.  I feel very discouraged.

On the plus side, I hope…I received an exercise bike from Amazon yesterday.  I saved up Amazon cards over the past year to get it, so it didn’t cost me anything:

It is supposed to be “easy to assemble”.  I am very bad at assembling anything.  Hopefully there won’t be too much swearing and crying.  The only time I regret not being married is when I am forced to assemble things!

As my world continues to shrink due to illness, I am not about to go down without a fight.  I am thankful that my mind is pretty much intact, even as I try to get my body under control.  At least with an exercise bike, if I start to feel sick I am already at home, so that’s the logic behind this purchase.

I have already eliminated soda, caffeine, bad fats, white sugar, and anything else that causes symptoms that I can think of from my diet.  I tried eliminating dairy and gluten, months ago, and there was no change.  Vegetables and fruits are hit-and-miss, as too much fiber wreaks havoc with my digestion.

I stopped dying my hair and I cut it super-short to see if this helped with the heat intolerance (it didn’t).  I use only organic soaps and shampoos, all free of sulphates.

I take 50,000 IU of vitamin D3 for my vitamin D deficiency. I drink enough water – bottled water, as this place is not Memphis with its artisan wells.  This place is where you can set your faucet alight due to fracking.  Heck, I even give my cats bottled water, the water here is so bad.

I cut back on all meds and only take blood pressure medication (not working all that well at times), a med for palpitations, and Tylenol for pain.  The new medication my gastroenterologist’s PA prescribed has, as one of its few side effects, a tendency to prevent absorption of vitamin D3 – so that’s out, too.

Besides, I haven’t any money for new prescriptions this month anyway.  I’ll have to do more surveys just to pay my bills this month.  I don’t need the stress but it can’t be helped.

Which brings me to recommendations…surveys.  Yes, they take forever to qualify and complete, but if you have a ton of free time they are sort of worth it.  Best ones are:

Mint Vine – pays out in gift cards (way too many to list) or Paypal.  Lowest payout is $10, and you can earn that fairly quickly (2 weeks or so).  It’s how I earn Amazon cards, primarily, and how I get Christmas presents for others.  If you want to join this one, please use this link, because I get extra points if you sign up through it and then actually take surveys:

https://mintvine.com/users/register/52e05f2a232d8731927685

Vindale Research – This one takes longer to do, but if you don’t die of boredom you can earn $50 in Paypal within a month.  That’s the minimum amount you can earn.  Definitely worth it if you are in a panic and spend all your waking hours doing surveys so you can pay bills (like me).  This is another one that can help if you sign up and complete the “evaluation” (demographics info) through this link – I get $5 per referral:

http://tryvindale.com/VDMDULiRD

OneOpinion – This, too, takes a bit longer but it also pays out in gift cards (Amazon, Target, Walmart, Home Depot, Starbuck’s, Visa) and Paypal.  Minimum earnings – $25.

Sorry to beg for referrals but I don’t think WordPress allows “donate” buttons, and I am really strapped this month from the extra OTC things I have had to buy in an attempt to control some of my symptoms (which I have now discarded because none of it seemed to help).

Terrible situation – health vs bills.  So I am desperate this month.

Weird news of the week: Binky the Cat bites would-be burglar!

https://www.nbcnews.com/video/cat-foils-burglary-963925059745

Made me smile.

Be good.  Be kind.  Please excuse the pitch for referrals, I won’t do it again.

 

 

 

 

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